Surgery started at 9 am. We got to the hospital at 5:45. It feels like
1 pm already. Loooong day ahead of us.
Sophie hasn't eaten since Wednesday night. She was ok yesterday until
the late afternoon when her energy crashed and the dressing on the
picc line started itching and burning (sensitive skin--prob just
adhesive irritating it, wasn't blistering or anything). I gave her
Benadryl and Tylenol, she slept a few hours, woke up for a couple
hours and watched tv, then went back to sleep around 9. She slept all
night till 5 am. We kept her well hydrated yesterday. So it went
pretty well, considering.
The place we're staying is called Haven House. I think it's an old
nursing home that's been converted to a hotel-like place for families
of hospital patients. The rooms are huge with private baths. They
serve breakfast and dinner, there are several family rooms with couch
and a tv, a gymnasium. Each wing has its own washer/dryer, full
kitchen, and family room. It's clean and homey.
Our pastor drove over this morning. He left at 3 am and was here to
see Sophie at 6:30 am. Totally unexpected and a huge blessing to us
We have a private waiting room on the surgery floor. The hospital
really does a great job taking care of families and siblings. My mom
and I took Luke to the play room on the lower level. We could even
leave him here, like a day care, if we needed to. He's paying the Wii
There's a Ronald McDonald family room at the hospital where you can
shower, wash clothes, has snacks and drinks for no charge. Each
patient floor has all that too, but this is smaller and a little
nicer. The lady there said their showers have hotter water than the
hospital's showers. :)
Sophie will be in surgery until 2 or 3 pm. Then the ICU all night,
then moved to the floor on Saturday. She'll have drains in her back
and a bladder catheter until Monday. The surgeon's nurse said she'll
probably go home Tuesday.
So that's everything so far. I'll post more when I can. Thank you for
all the prayers.